order some chicken fried
rice for take-out on Seamless. It’s from the Thai restaurant down the street
from our apartment in Brooklyn. It’s just regular chicken fried rice. I don’t
foresee it being written about in the Times, but I haven’t had chicken fried
rice in a while. I can taste it now. It’s going to be delicious. Everything is
going to be great.
Then my phone rings. I
pick up and hear Seema, but it doesn’t sound like my wife. The usual cheery,
bright, voice I expected to hear has disappeared. All I hear instead is sobbing
and hyperventilating. The sounds on the other end have a rhythmic tone as I
hear gasps of air convert to tears.
I know she had gone for
a follow-up with her doctor from the week before. I know from the sounds on the
phone that something horrible has happened. A few moments pass before she can
speak coherently.
“I can’t tell you on the
phone. You need to come here.”
She gives me the
address. I sprint to the corner of Union and Smith to flag down a cab. I try to
stay positive, but my mind is racing. Even as the taxi flies up the FDR, I
somehow already know what has happened. But I refuse to believe it. I convince
myself I’m being ridiculous and I shouldn’t think so negatively. I exit the cab
to see Seema waiting on the sidewalk. She seems to have calmed down. I get out
and give her a tight hug. Her petite frame feels smaller than I remember from
our embrace this morning.
“We need to go see the doctor
upstairs,” she says slowly. “We need to make an appointment with an oncologist.”
I stare at her. She
stares at me. Cars continue to drive by us on 34th street. Patients
enter and exit through the revolving doors of the medical center in front of
us. The words continue to hang in the air. Seema’s normally bright face is
completely drained. She’s ahead of me emotionally and I’m jealous of her head start.
I fear the cycle of sadness she’s experienced that I soon will. I don’t know
what to say, so I just hug her again tighter.
We hold hands as we walk
silently to the doctor’s office on the second floor and sit in the empty
waiting room. Seema answers her phone. Her parents have been calling every 5
minutes to check-in since she called them with the news. I’m oblivious to their
conversation as I look around the beige, asymmetrical waiting room. I see a pin
board filled with photographs of other patients. They are all happy and smiling.
I suppose it would be ill-advised to have a board filled with emotionally shell
shocked patients like ourselves. I feel a numbness slowly coating me. Seema
hands me her phone. Her parents want to talk to me.
I never really
understood the cliché of hating your in-laws. My wife’s parents have always
been generous and loving to me. I think about the last time I spoke with them
on the phone. It was probably Seema’s mom asking when we were going to visit
them in Dallas next, then Seema’s father trying to convince us to just move to
Dallas since there is no income tax. But that was then. This is now.
“Don’t worry,” they say.
“Everything is going to be alright, beta.”
I don’t understand their
positivity. Maybe it’s the only thing they can hang on to in this moment. They continue to talk and
reassure me but the words stop making sense. I don’t know where their
confidence originates, but I feel an emptiness in their words that is compounded
by the sheer amount of uncertainty that has been laid at our feet. My mind
tumbles from one dark thought to the next. Is Seema going to be OK? How bad is
the cancer? Has it spread? Is it terminal?
I hang up as a nurse interrupts
and leads us into an examination room. A stunned silence continues to
reverberate between the walls as we wait for the doctor. I hug Seema again, but
I can’t fix anything. I can’t make her smile. I can’t immediately make anything
better. I take in the first of many moments realizing that this Universe is
built on forces that are beyond our control.
A doctor comes in. He is
short, bald, terse and cold. He looks at a clipboard.
“We analyzed a tissue
sample from Seema. She has cervical cancer. We’ve set up an appointment with an
oncologist for you tomorrow.”
He continues to talk,
looking at this clipboard and allowing us no time to absorb the news.
“In my opinion, Seema
will most likely have to undergo a hysterectomy.”
I stare at him blankly. Hysterectomy. I’ve heard the term
before. Never thought to ask what it was.
The doctor detects the ignorance
emanating from my blank face.
“It means… We’ll have to
completely remove Seema’s uterus. Look, I need you both to start accepting the
fact that you will not be having kids.”
My soul takes a fierce
body blow. I feel a sudden, deep pain within my chest. I can’t breathe. I hear
Seema start crying again. I try to continue to stand
up straight and absorb the pain as the doctor sets an appointment for us with
an oncologist the next day. I pray they have better bedside manner than he does.
The trusses of the Brooklyn
Bridge fly by the window of our cab as we drive back home. There are no
answers, only a rapidly multiplying list of questions. I sit in the backseat as
Seema lays with her head in my lap. I run my fingers through her long, black hair.
I stare out the window of our taxi, looking at all the different unwitting drivers
and passengers surrounding us.
Fuck all of you ungrateful fucks. You don’t know
how good you have it. You don’t know how lucky you are to not have your life
ripped apart.
“Are you going to call your family?” Seema asks softly from my lap.
The thought of calling my
family hasn’t even crossed my mind. A new layer of sadness is added to emotional
sediment that is slowly burying me. I have to call them and let them know. I
have to tell them everything has changed. Then my phone rings. Unknown number.
Maybe it’s the doctor. Maybe this has all been one giant mistake. I answer my
phone.
“Hello?”
“You pick up order?”
“… What?”
“Fried rice. You pick up
order now?”
My Thai Seamless order
has been waiting for me. I can’t contain my anger. I take my newfound rage and
disappointment out on the Thai restaurant owner speaking broken English on the other
end of the phone. But my anger gets in the way. I begin stumbling through a
scream-stuttered response.
“NO. I… CAN’T. I’M NOT…
PICKING UP THE FRIED RICE. THERE WAS AN EMERGENCY.”
“Ok ok. Soooooo, you
pick up later?”
I want to say “I would
need an electron-fucking-microscope to see how little of a shit I could give
about fucking fried rice right now.” But I don’t know how to say that in Thai. I
hang up instead.
We get home and
immediately pour ourselves some Johnny Walker Black. I down half of the glass in
my first gulp. I feel its effects immediately as it burns my throat and gives my
muscles permission to relax. Never before have I better understood the healing
power of alcohol.
“I’m sorry,” Seema says.
“For what?”
“If you married someone
else… Maybe you could’ve had kids...”
She breaks down. I
squeeze her tightly.
“Don’t ever say anything
like that ever again.”
We sit on our couch and
alternate roles of crier and comforter. All those potential baby names we would
whisper to each other. All those discussions about what kind of parents we
swore we would be. Were we just tempting fate?
There are no answers. Only questions. Seema
decides to take some Zzzquil and crawls into bed. The combined shock, sadness,
and exhaustion catch up to her and she quickly falls asleep.
The apartment is quiet
as I sit alone in the kitchen chair with my drink. I need to call Dad. He’s a physician.
He’ll know what to do next. He picks up the phone, positive and beaming, always
excited to hear from me.
“Hey guy!”
How do you tell your
father that your wife has cancer? I struggle to push the words out, so I ask Dad
how his day is going instead. As Dad talks and laughs, I try to enjoy the last
few moments of pre-cancer normalcy that our family will experience. But I
can’t. I hate myself so much. I realize I’m
about to ruin Dad’s day. I realize I’m about to deliver him a sucker punch
directly to his emotional solar plexus. I realize there will be more phone
calls like this to make. More sucker punches to be thrown. More days to be
ruined.
I begin walking Dad
through the worst day of my life. I feel the wave of emotion hit me again as I
try to force the word “cancer” out of my mouth. My tears come quicker than I
realize. Johnny Walker has turned on me. He’s no longer my friend. He’s just an
instigator. When I finish my recap, I hear nothing on the other end, just the
sound of our kitchen ceiling fan rattling. It’s the first time I’ve ever heard
Dad speechless. In the silence I can hear him taking a step back and
understanding the full panorama of sadness that has encircled our lives. I
wonder about the worst day of my Dad’s life. I wonder if he’s thinking about losing
his mother to breast cancer when he was seven. I wonder if he is cursing this
disease that keeps entering the lives of his loved ones. But he isn’t quiet for long. He says he’s buying a plane ticket
and leaving Augusta for NYC that night.
I end the call. I sit in
the kitchen and try to breathe slowly and deeply. My tears will come again
later when I talk to Mom on the phone and I hear her crying. But for now, I just
sit and stare at the wall. The photos we’ve hung of our friends and our travels
stare back at me. One picture stands out, a
small framed photo of Seema and me sitting on a
swing on a porch in Indore in 2010. Seema looks radiant, wearing a red and
green sari while holding a cup of chai. Her soft, beautiful features are accented
by a slight smile. I wear an old hoodie with my beat up Atlanta Braves cap. A
shorter version of my beard surrounds my happy grin. But the more I stare at the
photo the more it doesn’t look like us. It looks like two kids I don’t know. Two kids oblivious they are sitting on some tracks with a freight train a few
years in the distance hurtling directly towards them. I
feel the powerful numbness weighing me down once
more, and I wonder if I’m ever going to feel anything ever again.
My phone rings. Another
call. Another unknown number. I pick up and hear a familiar voice.
“Hello, you still want fried
rice?”
I hang up. I can’t help
but laugh.
wake up suddenly,
staring at the ceiling of our apartment. I hear some drunk bros across the
street at the bodega arguing in the humid Brooklyn night. I look at Seema,
sleeping peacefully beside me. Sleep is nice. It’s our only escape from having
to deal with the newfound stress and sadness that has entered our lives.
The screaming bros
prevent me from sleeping, so I continue staring at our white ceiling instead. I
grasp at distant memories to cheer myself. I find myself thinking about our
wedding weekend eight months earlier in Charleston. I remember Seema’s bright
smile during our first dance to Rose Royce’s “I Wanna Get Next to You.” I see
us both surrounded by a sea of friends and family dancing to B.I.G., Kishore
Kumar and Montel Jordan. I remember speeches from loved ones and our parents
drastically underestimating how much alcohol our friends would drink. I
remember these same friends settling for warm shots of gin after cleaning out
the bar on that cool November night in 2013.
I see Seema and me on a
raised mandap on the banks of the Ashley River in front of our closest friends
and family on an idyllic Fall day. Seema looks like an Indian queen in her crimson
sari with her gold jewelry sparkling. Her dark hair and big, brown eyes are
framed by her crimson veil. The dupatta that hangs around my neck is tied in a
knot with her veil, connecting us as we hold hands and take turns leading each
other around a sacred fire. Each orbit around the flames symbolizes the
devotion to each other needed for a happy marriage. Afterwards we perform the Satapadi, the seven steps we take
together that each represent a different marriage vow of strength, positivity,
prosperity, health, happiness, trust and love.
I didn’t realize the
vows would be tested so early. I assumed I’d have at least a few decades until
our first family health crisis. I want more time. I need more time. I feel like I'm not ready for this, and I can never let Seema know that. The bros continue to
scream outside our bedroom window, pulling me back to reality and the blank
ceiling in our apartment.
The last 48 hours have been
a marathon of medical appointments. Dad and Seema’s mom have flown up to
provide moral support but to also act as medical translators who can interpret
the tsunami of medical jargon and analysis that is quickly enveloping us.
Dad is a cardio thoracic
surgeon who grew up in rural India and ended up raising our family in a small
town in Georgia. My bald head, eyes and nose are his own. He has a deep
commanding voice and is always ready sit back with a glass of wine and
reminisce. He brings a calming presence to any situation. As fate would have
it, Dad attended medical school with Seema’s mom in the mid 70’s. I lovingly
refer to her as Aai, the term for mother in Marathi. When pronounced correctly,
“Aai” sounds like a truncated version of the noise an Ewok screams during a surprise
attack on Endor. Aai is a successful OB-GYN who has an incredible bond with her
daughter. She’s a few inches shorter than Seema, and when in motion, takes short
steps that create her trademark waddle. Her shoulder length hair hasn’t changed
since I met her in 2007. She likes to laugh and takes immense pride in her
ability to make an excellent cup of chai each morning for her family.
Seema is paired with a new
team of doctors at NYU Langone. Dad and Aai are with us during our first appointments
to ask follow-up questions and throw out suggestions for medications or
procedures. We try to keep up, but the conversation quickly becomes complex physician
speak. Our parents ask follow up questions that I would have never thought of
asking. I’ve never been more thankful to have parents who fulfilled the Indian
stereotype of studying medicine.
The more we speak with
our new doctors, Seema and I are thrilled to learn this group actually has
bedside manner. They are nothing like the doctor who gave us the original
diagnosis. They are patient, caring and empathetic. They become our Dream Team,
a multi-headed beast with an expertise in Oncology, Radiology, and
Chemotherapy.
Seema is young. She is smart. She is beautiful.
She has so much potential. I can feel the Dream Team pulling for her. They want
her to beat this just as much as I do. I didn’t think that was possible, but I
accept it with open arms.
As we schedule and await
Seema’s first scans that will indicate the severity of the cancer, it becomes increasingly difficult to manage the flood
of uncertainties about our future.
I thought I had
everything planned out. I recently quit my strenuous job as a creative director
at a successful advertising agency with plans to freelance as a hired creative
gun. Seema just graduated NYU Law School and had the entire summer free before
we moved back to Los Angeles and she started a job at the prestigious law firm
Skadden Arps.
With our newfound flexible
schedules and free time we were going to do novel things like eat dinner together.
We would finally have time to enjoy New York City with each other and the
friends we love. Seema would explore fashion and intern with a designer. I
would read the 400 books I’ve ordered on Amazon over the past year but have never
read. We would travel and explore the world together. I would work out more. I
would do yoga. I would meditate. I would learn Muay Thai. We would get a dog.
We would name him Huck. I would do stand-up comedy. I would write movie scripts
with Seema and my friends. We would make films. We would get into Sundance. We
would all become famous and buy adjacent farms in rural Georgia. We would
volunteer for causes we believe in and would eventually win a Nobel Peace Prize
and a Congressional Medal of Freedom. Seema and I would attend a State Dinner
with Barack and Michelle. I’d make an off-the-cuff joke about Joakim Noah’s
hair to the President. He’d think I’m hilarious and would eventually quote me
in his final State of the Union.
Cancer has other plans. All our dreams take a backseat as we are forced to deal
with our new reality. I feel like we’ve been cheated out of a unique window of
time we carved out to enjoy life to the fullest before Seema begins her law
career. Instead, we are on the phone with NYU trying to figure out the exact
date Seema’s student health insurance will expire.
In addition to uncertainties
about Seema’s health, uncertainties about our future, family, and careers
constantly drift in and out of my everyday thoughts. Dwelling on all of these
uncertainties will slowly drive me insane. I
know this. So I search desperately for something, anything, to distract myself.
Seema distracts herself by diving into the prose of Junot Diaz and Chimamanda Ngozi
Adichie. Since Johnny Walker has proven himself to be an
unpredictable asshole, I bury myself in the 2014 NBA Finals instead. I bury
myself with a fanaticism normally reserved for televangelists and NYSE floor
traders.
The Finals are already a
highly anticipated series, a rematch from the previous year between the
two-time defending champion Miami Heat and the San Antonio Spurs. I remember
watching last year. The Spurs were thirty seconds away from winning the
Championship. The Larry O’Brien trophy and velvet ropes were brought out. The Spurs
were ready to pop the champagne. Then the Heat went on an improbable run,
punctuated by a Ray Allen corner three that sent the game into overtime where
the Spurs lost. The Heat emphatically closed out Game 7 in Miami and won the
Championship. The close-up of the Spurs bench in the final minutes of Game 7 told
a story of combined shock and devastation that I now know all too well. How
quickly things slip away…
A year later, the
basketball stars have aligned perfectly for a rematch. On one hand you have the
Heat, trying to achieve a threepeat which would propel Lebron into the next
level of the NBA’s Mount Olympus and give more fodder for the pointless “Lebron
vs. Jordan” debate. Then there are the Spurs. They are old, banged up, and have
a lot mileage. But despite their age, they have been rebuilt into a fast-paced,
well-oiled, small-ball machine by the loveable curmudgeon, Coach Popovich.
Like 99.7% of human
beings, I don’t like the Heat. I didn’t like Lebron leaving Cleveland. I didn’t
like his smug assumption of winning 7 straight Championships. I don’t like Heat
fans. I don’t like DJ Khaled. I don’t like Gloria Estefan.
I’m not a Spurs fan by
any means. But the week after the diagnosis, the NBA Finals becomes something
completely different for me. This has moved beyond a battle of
villains, heroes, rings, legacies, pundits, fan bases and statistics. I need
the Spurs to win. I need to know that it’s possible to rebound from a horrific,
soul-crushing loss and return stronger, more focused, and triumph. The fact
that our lives share nothing in common with NBA athletes doesn’t matter. I need
to see a comeback.
As the day of Seema’s
first scan arrives, however, things are already looking bleak for the Spurs.
The teams have split the first two games in San Antonio. The series shifts to
Miami and the Spurs are already in a hole. The Heat have stolen home court
advantage and no team has beaten Miami on their home court in the Playoffs.
I pace our apartment,
religiously refreshing Twitter and watching ESPN analysis searching for any
kind of Spurs advantage. I watch and loudly narrate Youtube highlights from the
previous years Finals analyzing weaknesses in the Miami offense. Seema alternates
between tracking my pacing around the room and continuing to read Americanah.
When we drive to NYU Langone for her scan, I try
not to think about the fast approaching Game 3 and the impeding uphill climb
ahead for the Spurs and ourselves.
The doctors allow me to
be with Seema for the scans, so I sit with her as she changes into a hospital
gown in a patient room in the lower levels of the hospital. Dad and Aai wait
for us in the waiting room. Seema’s first scan is a PET-CT scan, which stands
for Positron Emission Tomography – Computer Tomography Scan. It’s an advanced,
nuclear imaging scanning technique that gives detailed information about cell
structure.
Seema is given orders to
drink a viscous, white concoction. The drink contains barium sulfate, which acts
like a tracer that helps doctors identify cancer cells on the scan. From its
look and consistency, barium sulfate resembles a combination of chalk,
buttermilk and elk semen. But luckily this particular bottle of barium sulfate
is coffee flavored! Seema says the artificial flavor barely masks the awful
taste.
“This is the most
disgusting thing I’ve ever had in my life.”
The grimace on Seema’s
face makes it clear Starbucks is completely missing an opportunity to launch an Elk
Semen Mocha Liquid Chalk Frappuccino.
I hold Seema’s hand as
she lays on the hospital gurney and is wheeled into the PET-CT room. The
machine looks like a giant, immovable, beige donut that Seema must pass
through. Seema scoots from the gurney to the flat slab that will slowly inch
her through the scanning device. I stand next to my horizontal wife as doctors,
nurses and technicians buzz around preparing the machine and optimizing
equipment. As they speak to each other from across the room, it feels like we
are preparing to send my wife through the portal in Stargate. I sense myself becoming more and more nervous about the
scan and what the results will mean. My heart begins beating faster. I fear the
cancer has spread everywhere, even to Seema’s soft earlobes. I think about ways
to calm Seema.
No need. Amongst the din
of technician chatter and medical-speak, I hadn’t noticed Seema nonchalantly
chatting to an attending physician about the most recent episode of The Bachelorette. They talk about the
rose ceremony last week and a guy who apparently has been acting like “a real
dickhead to Andi.” I marvel at my wife who is unfazed by the environment and
the moment. I wonder if the scan results will also confirm the absence of fucks
given towards the cancer that also resides within my wife’s body.
The doctors tell us we
need to clear the room so they can begin the scan. They close the vault-like
door to protect us from the bombardment of radiation that will envelop my wife.
We move to an adjacent room that is the medical equivalent of NASA’s Mission
Control. There are so many different monitors, I’m not sure what to look at. I
focus on a smaller screen that shows the video feed of the scan room. My wife
who has been instructed to stay completely still for the scan to be accurate. Wrapped
in multiple thin white blankets, she looks like a tiny, motionless mummy.
As she is slowly inched
through the Stargate, cross-sectional slices of my wife begin appearing on
another screen. The doctors and technicians huddle around it and begin
analyzing. I have no clue what the fuck is going on. As I look at my wife on
the screen, I imagine Seema intaking Gamma radiation. Maybe like Bruce Banner,
she will gain super powers that will immediately cure her and turn her into a stronger
being with wondrous abilities. By day she will be a high-powered attorney, but
at night she will fight crime on the streets of Brooklyn. When the scanning is
complete, Seema appears to have no super powers (yet). She’s just thankful that
she can scratch the itch on her knee that’s been bugging her the last hour.
Seema, Aai, Dad and I wait for the results in a Radiology patient room.
Since the other patient rooms are filled, we are put in a children’s patient
room instead. We stare at the wallpaper of dinosaur illustrations as we wait.
Dr. Schiff finally
enters. He’s the Radiation Oncologist component of the Dream Team. His
omnipresent bow-tie is complimented by the omnipresent stethoscope hanging
around his neck. He has a walrus mustache that partially obscures a warm smile.
Combined with his protruding belly, he reminds me of John Candy if John Candy
was a world-renowned radio-oncologist.
Dr. Schiff breaks down
the scan for us. Luckily, we’ve caught the cancer early before it has the
chance to spread to any other organs. He’s spoken to the rest of The Dream Team.
There will be no hysterectomy. Instead, they want to pursue an aggressive
regimen of radiation and chemo as well as an additional experimental trial of
chemotherapy to help eradicate the cancer permanently. I like the word
“eradicate.” I like that the doctors are using military terms when talking
about fighting the cancer. I like that we are going to show the cancer no
mercy.
Seema tells me she is
ready for a battle. She tells me she is ready for an uphill climb. I feel the
same. When we leave the hospital, I feel like we’re slowly emerging from a fog
of uncertainty. We finally have a few answers. We know what the enemy looks
like and how we’re going to fight it.
We watch the next two
games of The NBA Finals at our apartment. I was worried with the Spurs losing home
court advantage and going to Miami. But the Spurs are now playing as if home
court advantage doesn’t matter. They play as if crowds don’t matter. The Spurs
find another gear in Miami and begin playing some the best team basketball ever
witnessed in the great game. Selfless and beautiful, fluid and precise, the
Spurs proceed to put on a clinic and blow out the Heat in back-to-back games in
Miami in some of the most lopsided victories ever seen in the NBA Finals.
The series heads back to
San Antonio, with the Spurs holding a commanding 3-1 series lead. The Spurs
could clinch the Championship in Game 5. It’s almost a forgone conclusion given
the kind of basketball that the Spurs have been playing.
But sports are funny.
Anything can happen. You can’t manufacture drama or momentum shifts. And as
improbable as a total Spurs collapse could be, you remember the other teams and
great players that choked and weren’t able to seal the deal. History is
littered with examples of teams defying the odds, going off script and pulling
off the impossible.
Some friends invite us
to watch Game 5 at a bar. Fuck that. I’m not switching up the sports feng shui
of watching at home, which has obviously ensured the previous two Spurs’ wins.
We need to keep the same energy going.
Seema and I order some
gyros and sit on our couch for tip-off. The Spurs start horribly, going 0-6
from the field. They are putting up brick after brick. Lebron, on the other
hand, is flying around like a demigod. He throws down putback dunks. He drains
long-range threes. He swats layups into the San Antonio bench. Five minutes
into the game, the Heat lead 22 – 9. The once raucous San Antonio crowd is
becoming more eerily quiet by the second. I knew we should’ve watched at the
bar. My mind begins a slow downward spiral of
dark thoughts. I see the chain of events that will unfold to rob Seema and me of
our Spurs’ comeback inspiration:
As I see things falling
apart for the Spurs, I see things falling apart for Seema’s health. Hope is
fading for both. Ghosts of the Spurs’ collapse from
the previous year begin to simultaneous haunt the AT&T Center and our
apartment. Maybe some defeats are just too devastating to bounce back from.
But then something
magical happens. Spurs’ shooting guard Manu Ginobili checks into the game. He strides
onto the court like a beautiful, balding, Argentinian unicorn. First possession
in the game? Bang. Manu nails a three. Next possession? Bang. Manu finds Kawhi
Leonard who knocks down another three. The Spurs are still down 12, but it’s a
spark. Everything begins clicking for San Antonio. The team that was so
dominant the last two games remembers who they are. They move the ball. Shots
begin to fall. Defensive stops are made. The crowd gets back in the game. Suddenly
the Spurs lead 37-35
In the Spurs’ doomed Finals
the year before, Manu did not play well. He had a few too many costly turnovers
and made a few too many poor decisions at the wrong times. But watching him
play now, I can see he was exorcising his own demons and disappointments from
the previous year. The moment that solidifies his redemption occurs in the
final minutes of the 2nd quarter, when Manu transforms into an
unbridled tempest of Rogaine and storms down the court. He blows by Ray Allen
then throws down the mother of all dunks on Chris Bosh. The Spurs crowd
collectively loses their shit. Across the globe, bald men in their late 30’s
simultaneously feel more powerful without knowing why.
Once the Ginobili dunk is thrown down, everyone watching now knows there is no
way the Heat are going to win this game. But I continue to watch, even when the Spurs are up by 20
points. The inevitable feels too good to be true. Not until the black and
silver confetti falls from the sky for the trophy ceremony do I feel like I can
pull away from the screen. Seema, long since bored from the blowout, is in the
kitchen drinking some tea while reading a book. I find her and squeeze her with
a tight hug. She looks at me, a little concerned her husband has lost his mind.
Maybe I did lose my
mind for a brief moment. Maybe it’s stupid to be so emotionally invested in a
sporting event that has no real relevance or ramifications to our lives. But
this one did. Thank you, Manu Ginobili.
I believe in comebacks.
here are about forty-six
empty seats in the waiting room of the fertility clinic. This morning only one
other couple waits with Seema and me. Is there some kind of fertility rush
hour? Is this place packed at 4pm? I make eye contact with the well-dressed,
middle-aged white couple sitting across the room every once in a while, an
awkward bond slowly created from the shared purpose of our environment.
We only have a few weeks before Seema’s treatment begins. It’s a small window
before doctors say they will begin strategically bombing Seema’s pelvis with
radiation. I’m starting to not be such a fan of the military jargon.
But there’s hope. The
doctor who first gave us the diagnosis last week was utterly wrong. The Dream
Team has told us we still have a chance of making a baby, but we’re running low
on time. The tumor is growing. We have to begin fertility treatments
immediately so we can harvest Seema’s eggs before the radiation kills her
ovaries. The treatment that is saving Seema’s life is robbing her of bringing
life into this world. Someone else will have to carry our child. But that no
longer matters to us. At least we have a chance.
“Kamath?” a nurse with a
clipboard announces.
Seema and I follow her
back to a spacious corner office where the doctor and nurse begin explaining
the procedure for Seema to self-administer the fertility medicine. The
instructions are a litany of prescriptions, needles, doses, more prescriptions,
sonograms, more needles and check-ups. The routine is so complicated that I
wonder if we’re trying to harvest eggs or prepare Seema to be the first human to
undergo cryostasis.
I want to make sure we
get the routine right, so I begin to ask follow up questions to write down the
instructions step-by-step. I expect the nurse to answer, but instead, Seema gently
places her hand on my arm.
“Jay, I got this.”
She takes over,
answering each of my questions with sweet authority. She’s memorized the
dosage, frequency, and each day of our follow up appointments after only
hearing it once. Seema ends the demo by assembling the injection pen with the
efficiency and speed of a Navy SEAL assembling an assault rifle.
I seem to have underestimated
how much my wife is not fucking around. At some point during the five-minute tutorial,
Seema transformed into a fertility medicine prodigy that can instantly channel the
cumulative knowledge of the Johns Hopkins Medical Library. Sensing we’re going to be okay following the
fertility medicine routine, I slowly put away my pen and paper.
Before we leave, I’m
told I need to give a semen sample for analysis. I wasn’t expecting this. My body
tightens and my anxiety spikes. What
if there is something wrong with my semen? What if I’m the reason this is no
longer a possibility? What if I’m the defect that takes all this newfound hope
from my wife? But there is no time to dwell on my sperm at this moment.
An older nurse gives me a plastic sample cup and the clipboard full of
paperwork and begins leading me to a different room. As we walk down the
hallway, I hear a song begin to play over the office speakers. The 80’s music
playing through the office has been white noise up to that point, but suddenly the
iconic opening chords of Journey’s “Don’t Stop Believin’” cuts through.
This is obviously a sign. Much like a city boy (born and raised in South
Detroit), I too must not stop believing. I give mental props to the DJ
currently holding down the Sirius XM Fertility Station for providing me sonic inspiration,
but my nerves persist. As the nurse and I
continue our long walk down the hallway, I distract myself from the impending
moment of truth by creating a mental playlist of
other songs that could provide the best soundtrack
to inspire confidence while ejaculating in the hopes of creating an embryo.
“Work It” by Missy
Elliott is an obvious choice, as is R. Kelly’s “The World’s Greatest.” “Glory
of Love” by Peter Cetera could be an inspirational anthem for the moment, but
the song could also summon mental images of Ralph Macchio at the least
opportune time. This is dangerous and not worth the risk. “Like a Pimp” by
David Banner would provide much needed confidence, while the consistent beat of
Technotronic’s “Pump Up the Jam” would provide rhythmic advantages.
“Here Comes the
Hotstepper” by Ini Kamoze makes sense, purely for the titular pun value while the
drums, horns and chanting of “Gotham’s Reckoning” by Hans Zimmer would provide
epic momentum in the homestretch.
The playlist would conclude
with “On Our Own” by Bobby Brown since I already tend to scream “Oooooooweeeeeeooooo,
y-y-you know it!” when I orgasm. Maybe there is some unwritten,
yet-to-be-discovered scientific law that jerking off to something from the Ghostbusters 2 soundtrack ensures the
healthiest semen sample for a healthy embryo. I would like to be featured in
that scientific study.
The nurse and I finally arrive at a narrow room with a chair, a TV screen, and a
small metal door in the wall that opens to a lab on the other side. The nurse
directs my attention to a shelf filled with a backlog of Penthouses from 2003.
She also points out the tube TV with three different channels. She wishes me
“good luck” as she closes the door behind her and joins the pantheon of most awkward
farewells I’ve experienced.
I sit alone in my masturbation cell and diligently fill out my paperwork and
label my sample cup accurately. I’m curious about the TV and the cornucopia of
pornography that must exist on all three channels, but I have a strange fear I
will turn on the screen and see the nurse’s face staring at me asking if I need
any assistance. Suddenly I hear more clanging on the other side of the wall to
the lab. I realize I can faintly hear Journey still playing outside. This room
isn’t even sound proof! I strategically opt for the magazines. Minimal sound. Years
of old school, 90’s stealth masturbation are finally paying off.
Filled with the confidence provided by Steve
Perry’s immortal words, I proceed to bust the healthiest load I can muster into
the plastic cup.
Seema and I sit and
order lunch at a French bistro down the street from our apartment. It’s a nice
spot with large sliding doors so we can feel a slight breeze while we sit
inside. As we begin to eat we notice the Edith Piaf background music we were ignoring
abruptly cut off. Suddenly the sound of Journey’s opening piano chords begin playing
over the speakers. We stare at each other
bewildered, wondering if someone is playing a joke on us. The bartender notices
we’ve stopped eating.
“You guys don’t like
this song?” he asks.
“This is the greatest song ever,” Seema states matter-of-factly.
“Good. The owner is out of town. If I hear one more French song I’m gonna fucking kill myself. Had to change it up.”
I don’t know why he
chose the Journey Pandora station to change it up. He could’ve easily selected
the Ma$e Pandora station instead. But the universe is mysterious. As the week
goes on, we notice Journey’s power ballad playing everywhere we go. Taxis,
elevators, and bodegas are all playing “Don’t Stop Believing.” Were we
oblivious to the ubiquity of the song pre-cancer? Regardless, Seema and I lock
eyes, smile and do a mental high five when we’re together and we hear the song
playing. The power of Steve Perry is strong and his omnipresence is another
obvious sign that everything is going to be okay.
I’m embarrassed that a
Glee-ified, cheeseball, karaoke anthem now has emotional value and has become
our philosophical North Star, but it has. With
every fertility check up, we get better news. Seema is responding well to the
medicine. Don’t Stop Believing. Sonograms show she is ovulating like the fate
of humanity depends on it. Don’t Stop Believing. We learn we might get up to sixteen
eggs from the retrieval. Don’t Stop Believing. My semen analysis comes back and
everything is healthy. Don’t Stop Believing.
Seema’s egg retrieval
goes smoothly. Sixteen eggs are retrieved. Eleven are fertilized, well beyond
the normal 50% success rate. We just need to give the process a few more days
to see how many fertilized eggs fully grow into embryos. We are feeling
confident.
Seema and I are walking
back home from the grocery store after stocking up on foods and vitamins
recommended by our hospital nutritionist, when we get a call from the fertility
doctor. We smile at each other as we arrive at our stoop, excited to hear the
results. I put on the speaker phone so we can hear the good news at the same
time. He tells us that three embryos survived
the growth process.
Three embryos? Only
three? Out of eleven? I feel the numbness creeping in once again, slowly
coating me. I suppose three is better than two. Or one. Or zero. But not right
now. It’s hard to see the silver lining when you’re so wrapped up in the moment.
I don’t even know what we’d do with eleven embryos. But it would have given us
more chances to try and start a family in the future. The disparity between my
expectations and my hopes feels like an ever-expanding chasm.
We hang up. Seema
looks up at me. I know this look. Her big brown eyes scan my face, trying to
understand how I’m handling the news. But I don’t want to have a breakdown in
front of my wife.
“I need to go for
walk,” I say.
“Wait, where are you
going?”
“I don’t know.”
It requires endurance
to stay relentlessly positive. I’ve run an emotional marathon the past few
weeks and I feel myself beginning to crack. Seema and I are symbiotic emotional
beings, where the feelings of one of us quickly envelop the other. I’m afraid of
our individual sadness combining into collective despair. So I leave my wife on
the steps of our apartment.
I walk up Smith Street
and I wonder if we are even meant to have kids. Is some higher power trying to
give us a sign? Should I just take the fucking hint? The farther I walk up
Smith the further I walk away from Seema and the more I’m disappointed in
myself for abandoning Seema in this moment. But sometimes you need to
disappear. Sometimes you need to be selfish.
As I continue to walk, I
pass seven different baby strollers and five expecting mothers. Each feels like
the Universe taunting me. I find a stoop. I sit. I seethe.
Fuck all of you and your fucking Bugaboo bullshit.
I continue sitting on
the stoop waiting for something to happen. I imagine an old man coming out of
the stoop door with his dog. He walks with a cane. He hobbles down the stoop
and notices me. He asks me if I’m ok. I tell him I’m not. I tell him my wife
has cancer and I don’t know how to deal with it. He tells me his wife had
cancer when they were younger, but they were able to weather the storm. He’ll
tell me his secret for getting through this ordeal. But no one exits the door.
I continue to sit alone on the stoop, a grown man who feels like a lost child.
I eventually pick myself
up and meander back home. I find Seema is sitting on our couch wrapped in a
blanket watching Law & Order: SVU.
She can tell I’m still upset. She gets up and gives me a warm hug.
“Don’t worry baby,” she
says. “Our family will be whatever it will be.”
Even with cancer she’s
the one that makes me stronger. I calm down. I feel foolish for letting my
anger and hopelessness get the best of me. I feel foolish for not remembering
the things I do have. Three is, in fact, better than two. Or one. Or zero. I
tell myself to remember what you do have and stop worrying about what you
don’t.
When I sleep, I begin having dreams of Seema
beating cancer. I have dreams about a faceless woman who will carry our child.
I have dreams about three embryos in a freezer somewhere in Manhattan. Three
chances to live on.
y first “Fuck you, Universe”
purchase comes a few weeks after the diagnosis. I sit in another carbon copy
hospital waiting room at NYU Langone. Seema is having her blood drawn to
monitor her white blood cell count before we start chemotherapy. Chemo will
weaken Seema, so her blood will constantly be analyzed throughout the treatment
to ensure her body has enough white blood cells for a functioning immune system
that can fight off everyday sickness and infections.
I open my laptop in the
waiting room. It is sad moment when you realize your laptop remembers a
hospital wifi network. As I use the spotty hospital wifi to look for
distracting internet things, I stumble upon an article announcing Dave
Chappelle will be performing stand-up at Radio City Music Hall. I assume when
you’re Dave Chappelle you can just do whatever you want, so he’s inviting Nas
to come perform the album Illmatic in
its entirety after his set. It makes sense. Nas performing Illmatic after anything would be amazing. Weddings, corporate retreats,
and quinceañeras
would all benefit from having Nas
perform Illmatic afterwards. I assume
when you’re Nas you can just do whatever you want as well, so he will be
performing the album accompanied by a full orchestra.
Seema and I were supposed to see Nas perform Illmatic at the Tribeca Film Festival that year. Nas was premiering
the documentary Time is Illmatic, a
film celebrating the album’s 20th anniversary, and was going to
perform the album after the screening.
I can’t remember why we
didn’t go. That alone speaks volumes. Whatever the reason, whatever the prior
engagement, whatever the errand, I’m sure it was not nearly as culturally
stimulating as Nas performing Illmatic.
I shudder thinking of all we’ve missed out on from being entangled in the
irrelevant minutia of life that feigns importance. We’ve been given a second
chance to see Nas perform one of the greatest albums of all time, this time
accompanied by one of the greatest comedians of all time. No way in hell we’re
missing this. No way we’re missing out anything. Never again.
It feels immensely gratifying when I click the
PayPal confirm button in the hospital waiting room. The
tickets are expensive, but I don’t really care.
Nothing frees up a bank account like a life threatening illness entering your
lives. I have no clue what life is going to look like for us in six months. Might
as well enjoy what we can, while we can.
We arrive at Radio City
early with a small group of friends, grab a few drinks, and get settled into
our seats.
Chappelle walks on stage
in a tailored black suit to a huge ovation. Chappelle lights up a cigarette and
wastes no time getting into his material. Any lingering doubts from stories of
Chappelle’s hit-or-miss stand-up performances over the past year are quickly
put to rest. We are witnessing a comedic goliath who has returned to the peak
of his abilities.
Chappelle delivers a
solid hour long set, most of which is penis related. He jokes about Donald
Sterling’s 80-year-old penis, a Wu-Tang affiliated rapper making a diamond encrusted
chain out of his own severed penis, men giving birth out of their urethras, and
being too old to masturbate.
Seema is laughing hard.
She’s laughing harder than me. It’s good to hear her laugh. She’s has a high-pitched
laugh and that always ends in involuntarily big, throaty gasp for air when
she’s finished. After the twenty-fourth audible gasp, I feel we have earned a
solid return on our investment with the tickets.
Chappelle crushes his
set and exits the stage. After a brief intermission, the house lights go down
once again. The 45-piece orchestra that has been assembled on stage begins
playing their rendition of the opening of “New York State of Mind.” A giant screen
flashes images of Nas’ childhood while counting down from 2014 to 1994 in giant
numbers until Nas himself struts onto the stage in a red tux. Radio City erupts.
“Straight out the
dungeons of rap! New York, what up?!” He salutes the crowd and takes a bow
before he starts rapping the song’s first iconic bars.
I’ve always felt the
first two tracks of Illmatic are the
greatest sonic representation of New York City that has ever been captured on
record. Subway tracks rattle and some kids from Queens frozen in time in 1992 drink,
smoke, talk greasy then proceed to deliver some of the most brilliant poetry
ever heard.
Nas commands the stage
like the 20-year vet he is. He paces, delivering his complex rhymes with gusto.
As fans rap along to key punch lines, Nas soaks in every moment. It must be second
nature for Nas to perform this album at this point in his career, but it’s still
impressive to see such dense rhymes performed live, far from the safe confines
of a studio booth.
Seema and I nod our heads
to the beats in unison. The hard drums knock accompanied by a live rendition of
the song’s looping iconic piano sample. When Seema and I started dating in
2009, we would drive around in my beat up Nissan Sentra and have in-depth
conversations about J Dilla, Mos Def and debate the merits of Jay-Z and Nas. Her
love for hip hop matched mine, which I didn’t think I would find in a girlfriend,
let alone a wife. During one of those early Sentra conversations I learned that
she had been on a date with Q-Tip. I found this incredibly intimidating and
inspiring at the same time. Since Seema is one of the smartest and most
beautiful women on earth, I don’t know why Q-Tip dropped the ball. But Q-Tip’s loss
is my infinite gain. Nas continues to rhyme for us onstage. I smile at Seema. She
smiles at me.
Nas moves onto the next cut on the album, “Life’s a Bitch,” accompanied again
by a flawless orchestra interpretation of the song. The entire crowd chants the
chorus with Nas.
“Life’s a bitch and then you die!
That’s why we get high,
‘Cause you never know when you’re gonna go!
Life’s a bitch and then you die!
That’s why we puff lye,
‘Cause you never know when you’re gonna go!”
After he spits his verse, Nas addresses the crowd as the orchestra continues to
play the song’s instrumental. He talks to us about his father, Olu Dara, an accomplished
jazz musician who recorded a trumpet solo specifically for the album track. He
talks about how his father composed the solo thinking about Nas as a child playing
in the streets of Queens. On cue, Nas calls out the trumpeter in the orchestra
behind him. A spotlight hits the trumpeter, who stands up and belts out a perfect
rendition of the wistful solo at the end of the song.
I’ve heard the song a thousand times before, but in this moment, this trumpet
solo performed live is the most beautiful thing I’ve ever heard in my thirty-one
years on this earth. It makes me think about Nas
and his father. It makes me happy that a son and father could collaborate on
something so timeless. It makes me think if I will ever be able to collaborate
with my son in the same way. It makes me think if I will ever have a son. I
feel nostalgic for something that has not happened and maybe never will. A warmth
burns within my chest as I feel my eyes well up. I catch myself.
Don’t. Don’t you motherfucker. Don’t be
the only person in human history to openly cry at a Nas show.
Maybe there was some guy who saw Nas perform “NAStradamus,” live in 1999 and
was moved to tears, but I doubt it. Flanked by my wife and my friends, I take a
few deep breaths to hide my emotions and ground myself. The strain needed to temporarily
redirect my sadness will probably manifest itself as heart disease or a stroke somewhere
in the future, but it feels worth it. There is a stupidity in not confronting
and embracing these emotions in the moment. But I’d rather take the short-term
rewards. I’m relieved I’ve dodged an emotional bullet in a public setting. The
song ends and the crowd cheers.
“What y’all wanna hear next?” a smiling Nas asks the crowd.
A few rows behind me, a voice emerges from the darkened crowd to pierce my state
of melancholy with a suggestion.
“ETHERRRRRRRR!”
The show ends. Seema and
I walk down 6th Ave with our friends in the warm New York City
night. 6th Ave is far cry from Queenbridge, but there is something
beautiful about hearing the quintessential New York album, then walking its
streets on a quintessential New York night. We walk a few blocks to the Halal
Guys. Seema’s face contorts as we approach the food truck. The grates on the
sidewalk emit a smell that only be described as that of boiling urine. It’s the
least strategic location for a food truck but that doesn’t stop us from joining
a line fifty people deep who are enduring the continuous bombardment of smells.
We stand on the sidewalk talking about Chappelle and Nas. We laugh and debate
the best jokes and best cuts performed. When we finally get to the window, one
of our friends proposes to the gentleman taking orders that they should somehow
incorporate the urine smell into their recipe. The stonefaced Halal guy taking
orders does not laugh. But Seema laughs. So do I.
As we wait for our food, I realize this all feels normal. Not so much the
quantity of urine jokes being made, but more so just enjoying a night out with
our friends. I feel relaxed. I can tell Seema does too. We’re not worrying
about white blood cell counts or the first round of chemo that approaches. It
feels like the initial shock has worn off. I can sense there are tough times
ahead, but we’re ready for the fight.
Life’s a bitch, and we endure.
n Seema’s first day of
chemotherapy, we awake anxious and excited. She says she feels like it’s the
first day of school. Seema hops out of bed and immediately begins the process
of picking the most stylish, comfortable outfit possible for the long hospital
visit. After second guessing a few of her choices, she emerges from our room
wearing grey Champion sweatpants, a giant, soft pullover emblazoned with the
graphic of a tiger roaring, with a blue beanie and furry slippers.
Seema paces the kitchen
as we make breakfast. I can sense Seema is nervous, so I
tell myself today is all about positivity. No matter what happens today, I’m
going to emit positivity. I’m going to radiate so much fucking positivity that
I will punch the first negative person I see.
We stumble through our new morning routine that we will eventually learn to execute
with military precision. I check and recheck the NYU tote bag we’ve packed with
blankets, socks, magazines and books. Seema has done her opposition research
online. Chemotherapy is long and boring. You need to keep yourself entertained
for the hours-long process of the strategic poison entering your body. There is
no way to anticipate what this treatment will be like or the side effects, but
we are excited to begin the process of ridding this horrible thing from our
lives. We eat our simple breakfast of oatmeal and fruit then recite some,
simple Hindu shlokas that my Mom gave us. I like our new morning ritual. I like
the rhythm of the Sanskrit. I like that we sit on our couch in our living room and
hold hands when we say the prayers in unison.
We step out of our
apartment into the brisk Brooklyn morning and pack into our Uber. When we
arrive at NYU Langone, the receptionists are warm and helpful. They welcome
Seema with open arms. The positive vibes I’ve sworn to emit are obviously being
reciprocated. A middle aged black man, with a tie tied so poorly it reaches the
middle of his chest, gently tells us we need to use the elevators to go to the
4th floor.
We enter the elevator and see we have a fellow passenger. In her 70’s, the
elderly white woman sits in her red Rascal scooter, wearing her pink hat,
sunglasses, and what appears to be a permanent scowl. From the look on her
face, I sense I should bite my tongue. I shouldn’t say anything. I can sense
that my positivity may not be reciprocated in this situation. I should just press
the button that says “4” and stay silent. But I can’t. The Southern hospitality
seared into my DNA from a childhood in Georgia gives me the compulsive reflex
to create small talk when in close quarters.
“Good morning,” I say.
“Are you here for treatment?” she blurts back.
“Yes. I begin chemo today,” says Seema sweetly.
“I hope it’s nothing like mine.”
Rascal woman’s tone makes my body tighten. Her voice has traces of bitterness
and anger. She emits a solid 8.7 on the negativity Richter scale. She removes
her hat to reveal a bald head, opening a Pandora’s box within this elevator.
“The doctors said it
would grow back. But it never did! Don’t believe a word they say!”
As she frantically
continues filling the elevator with paranoia and fear, I stand dumbfounded in what
has to be slowest elevator in the Western Hemisphere and can’t help but be
awestruck at the chances of this specific encounter happening. Of all the days
and all the elevators in all the hospitals in Manhattan, we have to be in the
exact same one inhabited by this angry, four-wheeled, medical conspiracy theorist.
We continue our excruciatingly slow climb together. My mind travels through
time. I think of the infinite, improbable historical chain of events needed for
her to be on the same elevator this morning. I
can’t believe our luck. If I had written down this morning exactly what I would
not want Seema to experience her first day of treatment it would be this. All
that’s missing is Rascal woman tossing acid on our faces then zooming off on
her scooter, never to be found by the authorities.
She probably has every
right to be angry. None of this is fair. Maybe this is a bad day for her. Maybe
she has no emotional outlets. Maybe she has no one to vent to. Maybe she has no
support. But I don’t care. I’m in damage control mode. Any sympathy I have
quickly gives way to protecting Seema and trying to salvage any semblance of
positivity that might still exist for today that hasn’t been shattered by
Rascal woman. I can see Seema becoming more scarred by the second. I briefly
contemplate the repercussions of tipping over a 70-year-old cancer patient on
their scooter, hitting the emergency stop button then attempting some kind of
exit from the opening of Speed. But before
I can do or say anything, the doors open to the 4th floor.
I’m happy as the elevator
closes behind us and Rascal woman is out of our lives forever. But the damage is
done. It seems like Fate obviously wants Seema to have a horrible first day of
chemo, and after our encounter in the elevator, I know Fate is playing hardball.
Seema looks deflated. Any “first day of school” positivity generated from our
morning routine has evaporated as we get settled in the hospital room. Seema
lays on the bed and I put some warm, wool socks on her feet. The nurse leaves to
go get the Chemo IV and I decide now is the time to turn this day around.
“Excuse me baby. I need to have word with the cancer before we start.”
I plant my face in Seema’s
crotch and begin speaking directly to the cancer.
“Hey cancer. Go fuck
yourself. You leave my wife right now. You’re not welcome here. We’re going to
fight you, you fucking piece of shit.”
I hear Seema giggle. Maybe it was the ridiculous nature of what I was doing.
Maybe it was ticklish. As I fling harsh, muffled insults into my wife’s uterus,
I can’t help but think of the all the cliché movie scenes I’ve seen where a
father whispers encouraging words to his yet-to-be-born child in his wife’s womb.
I’d give anything to talk to a child, a welcomed guest, instead of this hostile
intruder. But I don’t care. Making Seema laugh in this moment feels as
triumphant as victory lap with the Stanley Cup raised above my head.
The nurse returns to our room with an IV bag with clear liquid labeled
“CHEMOTHERAPY.” The bag has several neon green warning labels on it, each
stressing the hazardous nature of its contents that will slowly begin to drip
into my wife. The nurse asks Seema her full name and date of birth to make sure
the medical labels match the patient. She hangs the chemo IV bag and places
it’s tube into the infusion pump. The nurse presses a few buttons and leaves
the room as the pump comes to life.
In her research, Seema
learned that chemotherapy makes you feel cold, so we pile a mountain of warm
blankets on Seema. I pull a chair next to her bed, take out my laptop and we load
Netflix. Unsure of the appropriate genre to watch during an inaugural chemo
session, we decide to check out an episode of Cosmos. The infusion pump begins to beep every few seconds as the medicine
begins entering Seema, causing damage to heal. She slowly drifts off to sleep
as we listen to Neil Degrasse Tyson describe the beginnings of the universe and
the wonders of the Cosmic Calendar.
eema's hair starts falling out.
She can deal with the nausea, fever and constantly feeling tired, but losing hair
is different. The long, black strands she wakes up to glued to her pillow are
the first physical manifestations of the ongoing battle with cancer. I tell her
I think she’s beautiful no matter what. I tell her I don’t care. But I know my
compliments ring hollow for her. The more her strands fall on her pillow, the
more her thick eyelashes and eyebrows disappear, the more I catch Seema glancing
at herself in reflective surfaces and sighing. Sometimes our own self-conscious
is too strong a barrier for any adulation.
I try to help by relating to Seema with my own bald head. I say that we can
both be Mace Windu for Halloween. All we need is oversized, brown bathrobes and
purple sticks. Seema stares at me blankly. I slowly realize she hasn’t seen
Episodes I-III. I make a mental note not to use Star Wars prequel humor to
alleviate emotional pain from chemotherapy. George Lucas fails me once again with
horrible material.
As we lay in bed early
one morning, I tell Seema she should let go and shave her head. Every time she
sees her hair falling out in the shower or around the house it constantly
reminds her of what the cancer is doing to her and what it has taken away. The
hair loss gives her a reason to feel bad about herself. She nods and agrees. Shaving
her head is taking back control. Shaving her head will be losing her hair on
her own terms. She closes her eyes, takes a deep breath and exhales slowly. She
opens her eyes.
“Ok, let’s do it.”
The medical team at NYU
Langone has provided us a few different options for places to go for wigs. We find a salon near Grand Central that has the best Yelp
reviews. When we arrive, we are greeted by the owner who is also the main hair stylist.
He’s a portly, effeminate man with a thick, Israeli accent. Seema describes her
ongoing cancer battle and that he was recommended to us. He nods
sympathetically and guides us through the salon’s narrow, modern space to the
styling area in the back. He pulls back a curtain to reveal an entire wall of Styrofoam
heads resting on wooden shelves displaying a spectrum of different wigs in an
array of styles of shades. They stare at me blankly. Perhaps I’ve watched one
too many episodes of NCIS, but I
wonder if this could all just be a front for Mossad. As Seema browses the wig
options, I peer behind the wall, expecting to stumble upon a surveillance
device or at least a framed picture of Golda Meir and/or Eric Bana.
Seema chooses a wig she
likes. It’s a black bob that’s very similar to her hair before the treatment. When the stylist tells us the price of the wig I
realize I’m in the wrong profession and if things go sour for my career in
advertising, I will join the thriving industry of Israeli wig merchants.
Seema tells the stylist that
she wants to shave her head. He beams with pride and immediately whisks her to
one of his chairs. He tells her that this is the best decision she could make.
He tells her she’ll feel liberated. As he circles Seema in the styling chair,
he continues to reassure her and proclaims her hair will come back thicker and
fuller than before. I feel so thankful for the secret Mossad agent’s
positivity.
After taking an initial pass with scissors, he flips the switch on his clippers
and begins to slowly and methodically mow all of Seema’s hair. He talks
incessantly to Seema as he seems oblivious to this watershed moment in her treatment.
Seema smiles as the stylist gives a nuanced soliloquy regarding the deep
connection between Jews and Indians. I can see tears welling up in her eyes as
she politely listens to his analysis of the geopolitical ties of our respective
motherlands.
As the final pieces of her hair fall the floor, I’ve never been more proud of
my wife. She rubs her fingers against the prickly surface of her emancipated scalp
and stares at her new reflection in the mirror. This is the strongest I’ve seen
her during the treatment. This is the strongest I’ve seen her ever. For a
moment, I can sense the cancer is scared. The cancer realizes it has fucked with
the wrong 5’4”, 105 lbs., half-Gujurati, half-Marathi, Dallas-raised, Brown-Columbia-NYU-educated
badass that is my wife. She looks fierce. She looks defiant. She looks better
than Demi Moore in G.I. Jane. She
looks better than Natalie Portman in V
for Vendetta. She looks like an Egyptian queen. She looks more powerful
than three Cleopatras.*
Seema dons her wig and we bid farewell to our favorite Mossad agent. As we make
our way to the closest F train, I feel like the wig is the best purchase we’ve
ever made. I see the wig as new, powerful, camouflage armor that makes Seema
impervious to stares and questions. We can continue battling cancer in a
discreet way, hiding in plain sight amongst our fellow New Yorkers and blending
into the normalcy of chaos in this city we love.
* No disrespect, Ms.
Hill.
y walk to the therapist’s office is a straight shot up Court Street and goes right into the heart of Downtown Brooklyn. I like the walk. It’s great for people watching, but more importantly, there is a Popeye’s in Downtown Brooklyn. I make it a point to visit the Popeye’s before each of my therapy sessions for two strategic purposes.
They call me “Atlanta”
when I walk in, a nickname inspired by the Braves hat I constantly wear. They already
know what I’m going to order. I simultaneously have immense pride and shame
that I’m a regular at a Popeye’s.
“Whaddup Atlanta?”
“Hey.”
“Number 3 with sweet tea?”
“Yup.”
“Gonna be a minute. Ya boy is taking forever with the biscuits today.”
He motions to his
co-worker in the back, who quickly responds.
“Man, fuck you!”
They laugh. I laugh.
Talking with the people working at Popeye’s is a welcome distraction that feels
like more psychological relief than what happens in my actual therapy sessions.
It took me a while to navigate the bowels of the Empire Blue Cross website and
find a therapist. Perhaps I was just using their shitty digital user experience
as an excuse to postpone reaching out and setting up an appointment. It’s hard
to admit you need help. It’s hard to ask for help, when asking itself feels like
an admission of weakness. It’s hard to talk to
someone about your fear, anger and sadness. It’s even harder if that person is
a complete stranger. But I’m quickly realizing there is only so much I can say
to Dad, my brother and my friends about the cancer. I feel myself projecting
the same façade of positivity towards them that I do towards Seema to avoid them
worrying about me. Beneath the surface I can feel a fierce emotional undertow
that is dragging me downward.
I’ve also seen how
helpful Seema’s therapy sessions have been for her. She seems more mindful and
can clearly communicate how she’s feeling. These results seem far superior to
my approach of just internalizing my emotions until they get so pent up that I
become catatonic in the shower. So I put aside any pre-conceived notions I have
about therapy and decide to randomly cold call a number on the Empire database
list that is walking distance for our apartment.
Dr. Gottlieb is the therapist who has won the Empire Blue Cross lottery. Every
week we meet in his small, barren office. I sit on a blue couch as he sits
across from me in a leather armchair. There is one window behind him that
serves as opportunity to be distracted. There is one framed piece of art in the
room, an illustration done by one of his former patients. It’s surrealist
artwork; the creator must have been studying Dali that week in Art History.
Gottlieb is a small man
with thick glasses who wears oversized shirts and oversized ties. His outfits
are so consistent it becomes clear he must have gone overboard during the swing
craze in the mid 90’s and now his entire wardrobe is comprised only of zoot
suits.
Besides possibly being a
founding member of the Cherry Poppin’ Daddies who moonlights as a therapist, Gottlieb
is somewhat aloof. He is nice and well intentioned, but when I talk to him, his
eyes wander. He fidgets in his chair. He sighs. I eventually get the strong
sense that neither of us wants to be there. Unfortunately this realization
doesn’t happen until our fourth appointment, at which point the thought of finding
a new therapist and recounting the entire timeline of our cancer battle again
just seems mentally exhausting. I wonder if his other patients are in the same
predicament. So by default it’s just Gottlieb and myself, battling the inner
demons unleashed by my wife’s cancer.
During one of our first
sessions Gottlieb and I talk about my recent efforts to find movies and books
with themes of perseverance for Seema and myself. Gottlieb thinks this a
worthwhile endeavor. He even says he will think of a list of suggestions. I
feel good about Gottlieb being proactive and engaged. Maybe we’ve reached a
turning point. The next week he kicks off our discussion.
“Oh! I thought of a movie for you to watch!”
“Cool. Which one?”
“It’s called Life Itself. It’s about
Roger Ebert.”
“But… he died from cancer.”
“Oh. Right.”
There is an awkward silence for about twelve seconds as we stare at each other.
I wonder if there are any other recommendations on his list. I can only assume
they are such uplifting suggestions as watching Shoah, the 17 hour Holocaust documentary, while listening to “Tears
in Heaven” on repeat.
So no, I don’t like him, but I can’t deny that it’s helpful to talk. When I’m
with Seema, I have to constantly emit positive energy even during my sadder
episodes. At least with Gottlieb I can just vent. I can be negative without
fearing it might hurt Seema. I can spew my dark thoughts so they won’t fester. I
begin looking past Dr. Gottlieb’s strange mannerisms. I don’t care. We just
talk. My anger and sadness are released. It’s a deep well to pull from and I’m
frightened when I realize how deep the well is.
When I speak to my
family and try to articulate the sense of loss cancer has brought into our
lives, I stop myself from over sharing. I don’t want them to be concerned about
me. So I just add another brick to my façade of positivity. Instead of talking
about this seismic shift of our dreams and our life to them, I oversimplify and
tell them cancer is just a curveball life has thrown us. But I know a curveball
is not the right analogy. When you’re in the batter’s box you can actually see
a curveball coming towards you and try to make adjustments. The surprise and
shock of cancer is different. A more accurate analogy would be standing in the
batter’s box, waiting for a pitch, then Drew Carey appears out of nowhere and
stabs you in the neck with a screwdriver.
I talk to Gottlieb about
the curveball. I talk to him about Drew Carey and screwdrivers. Gottlieb
doesn’t blink. He doesn’t judge. He just listens.
I tell Gottlieb I can
feel my personality changing. My once natural state of being carefree now seems
so naive. I constantly worry when the other shoe will drop and what form it
will take. The lack of control and uncertainty is overwhelming. Will Drew Carey
return? He could be anywhere at anytime. I hate The Price is Right.
I talk about how hard it
is to see so many friends with their new families. They all seem so happy and
content. It feels as if everyone on the planet is having healthy, beautiful
babies. I see an incessant perfectly curated social feed of perfect photos of
perfect families and perfect lives. My jealousy leads to shame.
Gottlieb nods calmly,
then unexpectedly drops a knowledge bomb on me. He tells me it’s horrible what Seema
and I are going through. But I don’t know what other people have gone through. I
don’t know what struggles they’ve faced in their own pregnancies. Or in their
own lives.
The scenery on my walk back to our apartment is the same, but the characters
are now different. I pass my Popeye’s. I pass the halal stands. I pass the
Barnes & Noble, Trader Joe’s and all our favorite bars and restaurants on
Court Street. But when I pass my fellow Brooklyners a wave of empathy overcomes
me. I wonder what struggles they’re going through. I wonder what battles they
are fighting. Every face now seems like another façade plastered on that is hiding
some trauma in their lives. I vow to be nicer to everyone. I vow to add more small
acts of kindness into the world, the same that others have shown us that have helped
Seema and I through this trauma.
I get home. Seema is asleep. I lay in bed next
to her, but the knowledge bomb continues its aftershock. I wonder if I’ve been
wrong about Gottlieb. Perhaps he’s more than oversized ties and horrible movie
recommendations. Perhaps Gottlieb’s suggestions have value that I don’t see. Perhaps
I’ll take a nap, get up and watch Life
Itself.
t's December 2013, a month after our wedding. We are in Cambodia for our honeymoon to see the ancient ruins of Ankor Wat. The ruins are giant temples built over centuries with beautiful layers of Hindu and Buddhist architectural influences. As we explore, we see a smaller, stone temple removed from the larger temples. Two Buddhist monks with shaved heads sit on the floor inside. Our tour guide tells us if we give a small donation, the monks will tie a woven bracelet around our wrists. The bracelets will bring us good luck. Being pro-monk and pro-luck, we give them some money. One of the monks ties two pieces of tightly intertwined red and blue thread around my right wrist. Their eyes are kind and fill me with warmth. The donation feels worthwhile. It’s going to be a good year.
Eight months after the
honeymoon and three months into our cancer battle, the yarn and the monks
aren’t living up to their bargain. Seema is experiencing the worst side effects
of the chemotherapy. She has 105 degree fevers and can barely hold down any
food or water without vomiting. Seema then has to undergo a painful
brachytherapy procedure to ensure the success of additional internal radiation
procedures. The first attempt fails and she has to undergo the procedure and
it’s pain again. As she is transported in a gurney from one medical center to
the next, every slight bump created by a crack on the sidewalk causes her
immense pain. Seema screams with the slightest movement. I feel helpless.
I spend countless hours
in different hospital waiting rooms staring at my wrist and try to make sense
of the yarn that wraps around it. I don’t understand why the cancer has chosen
us. As I exhaust my rationality, I come to the conclusion that this is most
certainly some kind of karmic payback for past misdeeds. My mind drifts to
every major mistake I’ve made, every time I’ve let my family down, every
ex-girlfriend I hurt and all the hate each one has wished my way. All of it has
conspired against us. Maybe all those mistakes and ill will are just too much
for the monks and their yarn. I feel silly for putting so much faith and hope
in some string from two strangers on the other side of the globe. I wish there
was a science to the metaphysical, but there isn’t. We’re just getting older
and experiencing the clichés of life that we once thought we were immune to in
our youth. Perhaps there is no rhyme of reason to any of this. But I still
don’t take off the bracelet.
The doctors tell us that Seema’s white blood cell count is dangerously
low, and if it drops below a certain level we will have to halt treatment
because of her weakened immune system. I’m worried about Seema losing weight. I
worry that it will lead to lower immunity. Seema
and I fight when I think she isn’t eating enough.
Certain smells make
Seema ever more nauseous, so I try making her the most simple, bland meals that
won’t upset her stomach or offend her nostrils. I bring her a plain turkey
sandwich with a smoothie. Our nutritionist at the hospital has recommended
adding olive oil to each smoothie for extra needed calories that don’t affect flavor.
I bring the meal into
our bedroom. Seema is tucked under the covers with her oversized blue beanie covers that her head.
She takes a bite of the
sandwich, and then immediately tells me she’s full. She can’t eat anymore. I
implore her to take another bite, or take a sip of the smoothie. She doesn’t
want to.
“Babe, can you try to
take another bite?”
“Jay, I can’t.”
“Seriously? You haven’t
even eaten anything today.”
“I feel like I’m going
to throw up.”
“Fine, whatever.”
I storm into the kitchen
and set the tray down. It’s hard constantly teetering
from sympathy to frustration. I’m worried she will whither away if she doesn’t
eat enough. I’m worried how much worse the treatment and side effects can get
if she doesn’t eat right. But I can’t force her.
I eat the leftover
sandwich and smoothie I made her. I feel annoyed and let down. Why can’t she
just take a few more bites? I feel like Seema is being too picky with food.
Then I remind myself.
Oh. Right. She’s going through chemotherapy, you
fucking idiot.
I come back into the
room sheepishly and apologize. I lay with her and give her a tight hug. But that doesn’t stop me from worrying about low white
blood cell production and having to stop treatment for Seema.
I have no idea what will affect white blood cell
count, but neither does anyone else really. Cancer is a disease with so many
variables and unknowns. Doctors, nurses and nutritionists all have their own
opinions on what is best for Seema and what she should be eating to increase
her white blood cells. My mom and Aai also have their own opinions on what
foods and habits will increase the count. My grandmother’s solution is to sit
in her favorite chair in my childhood home in Augusta and pray constantly. My
aunt in India has a puja done in our names at my family’s ancestral temple in
Mangalore. Seema tries her best to eat my turkey sandwiches and not overanalyze
WedMD (which should just be renamed “SecondGuessYourMedicalProfessionals.com”).
I continue to whisper my own prayers at night in the darkness of our bedroom
and wait for the bracelet to kick in.
Seema is too exhausted
to go out. So we watch Netflix to pass the time. But watching 634 consecutive
episodes of Law & Order: SVU leaves something to be desired.
“What do you want to
watch next?”
“I don’t know. You
pick.”
“Oooh, Mega Shark Versus Crocasaurus!”
“What? No.”
“It has Jaleel White in it!”
“Jay, I don’t want to
watch anything with a giant crocodile or Jaleel White.”
The best non-giant
crocodile/Jaleel White viewing option we find is Jiro Dreams of Sushi. It’s a wonderful documentary about an elderly
sushi chef, Jiro Ono, and his one-of-a-kind, 3 Michelin star sushi restaurant
located in a Tokyo subway. The dedication to craft and presentation of food
captured in the film makes us salivate.
Just a few days after we
watch the film, we discover that one of Jiro’s sushi apprentices featured in
the documentary, Daisuke Nakazawa, has opened his own restaurant in the West
Village called Sushi Nakazawa. The reviews are unanimous in their acclaim.
Ingredients are caught and prepared the same day by Daisuke, ensuring a
freshness, quality, and craft that exists at Jiro’s original restaurant. The
only reservation available is the night before Seema’s next chemotherapy
session. We decide it will be a delicious distraction and make the reservation.
Our pre-chemo date night
starts well. We are escorted past the sushi bar in the front of the restaurant
to the small, modern dining area in the back. We are seated next to a young,
French family and some middle aged banker-types. We feel a bit out of place.
Seema whispers to me.
“Do you think anyone can tell I’m wearing a wig?”
“Hell no. You look amazing.”
Seema looks over the wine list.
“You ready?”
“So fucking ready.”
“You only eat at Sushi Nakazawa once, right?”
We order a nice bottle
of wine and prepare ourselves for the onslaught of Chef Nakazawa’s
twenty-course omakase. Seema is excited. Her eyes are bright. She’s been
thinking about sushi since we watched the documentary, and now we’re about to
indulge. I’m more excited that her appetite has returned.
The meal at Nakazawa is incredible and every bite lives up to the hype. The
fresh ingredients stimulate different regions of our taste buds. Each course is
more delicious than the next. I can only assume the final dish of the evening
will be a magical seahorse, drizzled in Poseidon’s tears that will grant you
three wishes and allow you to shit fine silk.
The next course our
server brings is a plate of sea urchin. A thin, circular wall of seaweed paper
houses a brown, puffy, gelatinous substance. It’s the first course that looks
suspect. But given where we are, we know we must trust Jiro’s padawan. Seema
takes a bite and her face lights up. The texture is unexpected, but undeniably
good.
The final course isn’t a
magical sea horse, but a small, perfectly sliced brick of egg custard. It’s the
same recipe that Chef Nakazawa strived to perfect under the tutelage of Jiro in
Jiro Dreams of Sushi. After his 200th
attempt at perfection, Jiro finally deems the custard acceptable and Daisuke
recalls crying in happiness. It is a fitting final course. But Seema can’t stop
talking about the sea urchin. She says there was something distinct and unique
about it that she can’t quite describe. I’m just enthralled Seema has powered through
an entire meal. We leave with full stomachs, a massive bill, and thankful for
our pre-chemo date night.
The next day, Seema gets
her routine blood test before her chemotherapy. When the nurse returns with the
results, we learn that her white blood cell count has spiked out of nowhere.
Suddenly, everything seems so simple. It was obviously the fresh sea urchin
hand picked and cooked by Jiro’s apprentice combined with prayers from my
grandmother and a cosmic beacon from an ancestral temple in India along with
the bracelet from the two monks in Cambodia that directly affected the rise in
Seema’s white blood cell count. It all makes perfect sense.
Seema and I feel like we’ve stumbled
upon the sushi silver bullet to increasing white blood cells. As we leave the
hospital after the blood test, Seema and I discuss our discovery.
“It had to be the sea
urchin. I’m positive,” she says.
I nod in agreement.
It makes perfect sense
to make another reservation at Sushi Nakazawa the night before Seema’s next and
final chemotherapy session. We go all out again. You only eat at Sushi Nakazawa
twice, right? The meal is just as delicious as
the last. When the sea urchin dish arrives, Seema and I knowingly nod at each
other. Fuck you, cancer. Time for a white blood cell booster shot.
We arrive for Seema’s final chemotherapy session the next day and get her blood
tested once again. I have the confidence of Larry Bird with his final shot in
the 1988 All-Star Three Point Contest. This one is in the bag. My only worry is
if the sea urchin works too well and Seema gets some sort of super human white
blood cell powers. Our nurse returns with the results. The white blood cell
count is healthy and we can proceed with the final chemotherapy treatment on
the 4th floor. I walk out of the room Larry Legend style, one arm
and one finger raised to sky.
Seema is administered the IV for the final round of chemo. Her doctors, nurses
and nutritionist swing by the room to say hello and check-up on her. Everyone
expresses how happy they are that the white blood cell count had risen. I feel
compelled to share the connection between sea urchin and white blood cells we’ve
uncovered. We need to start planting the seeds now so Seema can be cited in the
medical study.
“So, Seema and I had sushi last night.”
The nutritionist stares at me in horror.
“YOU DID WHAT??”
Seema and I both look at
each other. Our wide-eyed gazes connect as we telepathically wonder together how
badly we fucked up. I try to recover.
“We… we ate at Sushi
Nakazawa. Have you ever seen the movie Jiro
Drea-”
“You should not be
eating sushi. Didn’t you read the pamphlets I gave you? That’s the worst
possible thing she could’ve eaten!”
The white blood cell count begs to differ, lady.
Scoreboard!
“Really? Why?” I ask.
“Sushi is raw! You don’t know if it was cleaned
or prepared correctly. Her immunity is weakened from the chemo. Who knows what
other foreign substances could have been on it? How could you have been so
careless?!”
Instead of discovering our sushi silver bullet, we
appear to have dodged it. I look at Seema and shrug as she smiles at me. Guess
it was the bracelet after all.
A
few weeks later, Seema and I sit at an outdoor table of a restaurant near our
apartment. The sun shines. Seema eats a salad. I eat a fish sandwich. I tell
Seema I’m amazed at the fact that the yarn around my wrist still hasn’t
disintegrated or fallen off yet despite being tied-on eleven months ago. I tell
her about how I’ve spent hours wondering if this accessory has any metaphysical
value or if it was just two women with shaved heads in Cambodia hustling
gullible western tourists. I tell her that it’s made me question the inherent
decency of our fellow humans and the value of religion and superstitions in
modern society.
My wife, the cancer survivor, tilts up her sunglasses. Her face glows with
sunshine and she looks at me lovingly.
“Jay, it’s just string.”
ix months after the
diagnosis, a cold December grips NYC as we begin the slow process of packing up
our apartment. Sunny Los Angeles beckons. We are ready to begin the bumpy reentry
into the life we had planned before cancer. Seema will be starting her job at a
prestigious law firm in the new year. I’ll continue to freelance and maybe eat
some tacos. Tacos that are equally prestigious.
Normally my
procrastination is the source of annoyances and aggravation. But with our
impending move, my procrastination is a weapon. There are still boxes yet to be
unpacked from us moving in three years ago. Jokes on you Life. I’m so fucking
behind I’m ahead.
The night before we leave, we plan one final hurrah in NYC with a group of our
best friends. We decide on a two-pronged assault of the West Village. Our first
stop is Wogies, a Philly bar on Greenwich Ave. It’s a nostalgic location for
Seema and I. The bar was the launching pad for our first hook-up on a cold
night back in February 2009. The bar stayed open longer than usual that night.
Seema convinced the owner to let us stay and also managed to get my friends and
I free shots of tequila. From that moment on I knew she would be the heroine in
an epic poem we would write together.
We arrive at Wogies on
our final night in NYC rolling 20 deep. We eat cheesesteaks, drink Yuengling
and reminisce. Even though the treatment is done, Seema can’t drink too much since
her body is still weak from the chemo. So I step up and let her know I’ll be
drinking for both of us.
We eventually rally our
crew of warriors to Karaoke Boho a few blocks away and reserve a room in the
back. As we wait for our room to be set up, we grab drinks by the bar and get
to witness a tubby Filipino man possessed by the ghost of Etta James belt out a
flawless rendition of “At Last.” I am inspired and hope to channel the spirit
of Lionel Richie.
I proceed to consume my
weight in sake as we all butcher renditions of such classics as “Conga,” “Say
It Ain’t So,” “How Will I Know,” “That’s What Friends are For” and “Bailamos.”
Around 3 A.M., when the headache of continuously sing-screaming for several hour
sets in, a bittersweet feeling sets in as well. I’m happy we’re moving to LA.
It feels like turning the page. A fresh start feels right after such a
tumultuous year. But leaving this particular group of friends feels wrong.
These friends who cooked for us during Seema’s treatment, who brought Seema
flowers and care packages filled with candles and trashy, gossip magazines she
loves. These friends who came over to watch The
Bachelor with Seema since they knew it made my eyes bleed. These friends
who got edibles for Seema that helped her work up an appetite to eat. These
friends who got drunk with me on rooftops and let me rant and vent. These
friends who brought their dog to our apartment to make Seema feel better. These
friends who showed up at 8am to surprise Seema on her final day of chemo. These friends who helped us through the hardest year
of our life.
When we leave the next day, we will be saying goodbye to these friends and a
time in our lives that we will never get back. Even in my drunken state I
marvel at the improbability of the intersection of so many of our favorite
people that all happened to be in the same city at the same time. But New York
City isn’t sustainable for most of us. At some point we’ll all be splintered
across the country and the world. Our paths will all surely cross again many
times, but I can’t help but feel like we’re leaving a community we will try to
recreate for years to come but will never quite succeed at replicating.
We awake hoarse and hungover the next
morning and scramble to make our flight departing NYC. In the chaos, I’m
thankful for this hangover. It mutes the pain of leaving.
Before we move to
California, we will be making a slight detour to Georgia for the holidays to
stay with my family. Since Seema is tougher than a brick of adamantium, she has
declined the extra time off that has been extended to her by her law firm, and
will instead pivot straight from chemotherapy treatment to studying for the
California bar exam. It’s toughest bar exam in the country. Other state’s bar
exams take two days to complete. California’s takes three. But that doesn’t
deter Seema. She wants to start her new job as soon as possible, and that means
crushing giant volumes of nuanced state law at record speeds.
Augusta is a sleepy
Southern town that is equal parts quiet and boring. It’s the perfect place for
Seema to study and for us to regroup before our voyage West. Dad has also
arranged an important scan for Seema at the Medical College of Georgia. Much
like the Stargate scan that began the
treatment, this scan will be a bookend that will allow us to determine how
successful the chemotherapy and radiation treatments have been. It seems
strange to be adding a new set of doctors in Augusta into Seema’s already
crowded bench, but I trust my Dad.
The plane takes off for
Georgia. My hangover gets the best of me and I fall asleep as the crowded
footprint of NYC fades beneath a thick layer of clouds.
I sit beside Seema as
she lays flat and enters the MRI scan. I put on a pair of hospital earphones to
block the deafening sound the MRI creates. The headphones are so bulky and worn
they look like they were used by a helicopter pilot extra in Apocalypse Now. But even Coppola’s
oversized headphones cannot distract me from our surroundings. The MRI room is a sad place. The windowless room has
three of the four walls painted with a mural of blue sky and green fields, as
if to try and cover up the fact that we’re bathing in florescent lights and a
gargantuan, metal machine is swallowing my wife.
After the scan there
isn’t much to do but wait for the results. Naturally, Seema, Dad and I go eat some pie at The Boll Weevil, a restaurant downtown not too far from the hospital. We sit. We eat pie. We drink
coffee. We try not to think about the scan. Pie has wondrous powers, but it
doesn’t seem to be distracting enough today. After an hour of eating pie a
drinking coffee, Dad gets a phone call. The scans are back. His colleagues tell
him to come by the hospital and look at them himself. Dad tells us to wait.
He’ll be back. We shouldn’t worry. Seema and I order more pie. We wait. We
worry.
I eat a bite of pie. I
look at Seema. I have an epiphany. It could be the pie. It could be how my wife
looks sitting across the booth from me. It could be a combination of the pie
and the way Seema looks. But I slowly realize that maybe there is a silver
lining to the curveball/Drew Carey stabbing us in the beck with a screwdriver.
Seema and I are now closer than ever before because the battle with cancer has
created an impossibly strong bond between us. Like two soldiers in a foxhole
being shelled in Bastogne, the last six months we’ve huddled together in a
tight embrace, hoping we can avoid the artillery fire and shrapnel of the
unknown. With every appointment, scan, success and setback, a deeper, unspoken
respect has been building. No one else will ever know what we truly went
through. Only us. We are now more patient with each other. We are more
sensitive to each other. My love for my wife has grown as I’ve witnessed her endure
and persevere.
I take another bite of
pie. I realize Seema and I have been given the gift of a new lens to revaluate
what’s truly important in our lives. We have a perspective that others don’t.
We know what we have lost. Nothing can be taken for granted. Everything should
be celebrated. We know that time is precious. So what should we do with our
time?
I eat some more pie. I
want to spend time with my wife. I want to spend more time with my family. I
want to hear my nephew laugh and I want to see my parents more. I want to thank
my parents for everything they’ve done for me and ask them about every
sacrifice they’ve made for me so I can appreciate them even more. I want to
surround ourselves with people who love us and who are supportive of us. I want
to hug every one of them a little tighter now. I want to be unashamed to text
these friends expressing that I love them. I want to carve out all the bullshit
people, events and noise from our lives. We’ve never had an excuse to do so,
but now we do.
I continue to eat pie
and wonder. Would we be worse at marriage without the cancer? Would we have not
found a deeper appreciation for each other and life without it wrecking our
lives? Is there an alternate universe where we aren’t continuously tested that
makes us not as close?
I can’t eat any more
pie. My thoughts begin to wade between what might have been and what will be. I
take a deep breath and try to reassure myself. If the other shoe does drop, or
another curveball is thrown, or if Drew Carey reappears, we have this battle
with cancer as a barometer to measure our durability. The other challenges life
will throw our way will just feel like annoying hiccups in comparison. I know
we will be tougher than we previously were. And we will be ready for what comes
next.
“Babe, what are you
thinking?” Seema asks.
“Nothing,” I respond.
We don’t hear anything
from my Dad. The radio silence is unnerving. Suddenly, he walks through the
door of the Boll Weevil. He is beaming. He wraps up Seema and myself in a huge
bear hug. The scans have come back completely clean. The doctors referred to
the scans as “beautiful.” N.E.D. they say. No Evidence of Disease.
We wear giant grins as
we speed back home in Dad’s car. I resuscitate Dad’s beat up iPod mini I bought
him in 2007 that has spent the last century permanently lodged and forgotten
between the passenger seat and center console. I excitedly use the click wheel
to scroll through his music selections for our soundtrack.
“What should we play?!”
Seema asks excitedly.
“I don’t know! All I see is Simon &
Garfunkel and The Beverly Hills Cop Soundtrack!”
“Frank Sinatra! Play Frank Sinatra!” Dad exclaims.
Dad rolls down the
windows as “The Best is Yet to Come” blasts from the speakers and we fly down
Fury’s Ferry Road. We arrive home and are greeted with hugs from Mom and my
grandparents. We cry tears of laughter and relief. We pop a bottle of champagne
and make phone calls to spread the good news to friends and family.
This should be a moment
of triumph. Seema has gone through chemo, radiation, and more chemo. This cancer
nightmare should be behind us. But the moment is fleeting. The next night,
Seema and I sit on a couch in my parent’s living room drinking some wine and
watch my Mom happily cook up a storm in the adjoining room. Dad comes home from
work, pours himself a glass of scotch and sits in the leather armchair across from us. I
can tell something is wrong.
He tells us a doctor in
Augusta has suggested that, despite the beautiful N.E.D. scan, we should
consider being even more aggressive with the treatment. He says Seema is young
and can handle an additional series of chemotherapy treatments. Going through
this extra chemo could decrease the chances of a cancer reoccurrence in the
future.
I look at Seema. She is
handling the news way better that I could. She is composed, but I can see she
looks completely drained. She lets out a deep sigh.
Another round of chemo
might seem like overkill. But if cancer is a strange beast, chemotherapy is a
stranger one. When treating cancer with chemo, the first wave of treatment is
your best shot at taking out the cancer. If there is a reoccurrence later down
the road and you’ve already been treated with chemo before, the chemo is
exponentially less effective the second time around.
Our doctors in NYC say
we’ve done enough. We shouldn’t proceed with more treatment. We have a choice.
Do we hit the cancer with another uppercut?
We have an impromptu
conference call in the living room. Seema is naturally torn. Like the President
in the Situation Room, Seema wants to hear everyone’s opinion before deciding
the next steps. I dial Seema’s parents, put my speaker phone on, and set in on
coffee table in the middle of the room. After Dad explains the predicament, I
can hear the frustration in Aai’s voice as the iPhone speaker crackles. I
understand her frustration. She doesn’t want her daughter to do more chemo. She
doesn’t know this doctor in Augusta. All she knows is that they are
recommending putting her daughter through more suffering. Our deep bench of
doctors now feels like too many cooks in the kitchen.
My gut says no to the
chemo as well. The thought of Seema going through additional rounds of chemo is
excruciating. But the thought of cancer reappearing later in life, and the
constant nagging sensation of wondering if we did enough, is even worse. As our
Sisyphean reality sets in, I find myself frustrated on the verge of tears. The
goal posts keep moving. Sprouts of Seema’s hair have just started to grow back.
It’s a sign of a return to normalcy, but now it feels like we’ll never be done
with this chapter in our lives. We were so ready to move on. We were starting
to make plans again. But cancer will not be ignored. Cancer doesn’t give a fuck
about your plans.
Aai says no to the chemo. Dad says it could be worthwhile.
Doctors in NYC say no treatment. The doctor in Georgia says more treatment. Seema
and I are unsure what to do. We’re all divided. But we have an appointment with
Seema’s new oncologist in Los Angeles in a few weeks. She will be the
tie-breaker.
The California sun beats
down on our rental as we crawl through sluggish traffic on the 110-N. Dad and Aai
have flown in for the tie-breaker appointment at USC Keck Medical Center in
Pasadena. I’m happy they are here. Our initial team from the first week of
diagnosis in Brooklyn has come full circle in Los Angeles. As we wait in
traffic, I can’t help but think about all our stuff from our Brooklyn apartment
sitting in storage waiting to be unpacked so our lives can be unfrozen.
We finally pull up to
Keck Medical Center and drive through the medical campus. My heart pounds as I
wind the car through the giant, spacious parking garage next door. I can’t
navigate my emotions of anticipation, excitement and fear that are all attached
to our new oncologist’s treatment recommendation.
After we check-in, we
wait in one of the patient rooms. Seema sits upright on the examining table,
her short legs dangling over the side. Dr. Roman
walks in and introduces herself. When I shake her hand I feel like she could be
the mom of one of my friends from high school. She is warm and caring, but
direct. She takes us step by step through her analysis of the MRI scans from
Augusta, then patiently answers our avalanche of questions about how to
proceed. She speaks with a confidence and authority as she answers each of us
individually. Then Dr. Roman turns to Seema and speaks to her as if she’s the
only person in the room.
“Seema, I’ve dealt with
a lot of patients over the years. And I can say one thing for sure. More isn’t
always better. The treatment you’ve gone through is extensive. You’ve put your
body through a lot. More chemotherapy is not the answer. You’ve done enough.
It’s time to start living. It’s time to start getting on with your lives.”
Seema looks at me and smiles.
I smile back.
Time
to start living.
It’s music to my ears and the best advice I’ve ever heard.
Thank you for taking the
time to read The Curveball. If you feel motivated, please donate to one of
these organizations that helped Seema and I during her battle with cancer:
NYU Langone
Gilda’s Club
Livestrong
Thank you to our families.
Thank you to #TeamSeema
(pictured above cheering Seema at her last chemo session).
Thank you to all the
doctors, nurses and staff at NYU Langone.
Thank you to my
classmates at Writers Workshop LA and our instructor Seth Fischer who helped
me realize this story had value.
Thank you to Peter
Vattanatham for designing the cover.
Thank you to Tyler
Branch for taking the cover photo on our wedding day.
Thank you to Seema for
everything. I love you.